Danny CarltonYou have to remember that the people that post on this board do so because they have a reason. Most are parents concerned about their children. Some are people with CAH that have struggles and look for others dealing with the same problems, so they can support each other. The teenagers and adults with CAH whose meds are balanced just right and have a minimum of symptoms, really don’t have a lot of use for a board like this and would rarely post.
Jonathan (my son) is 9. He played soccer last year, and is playing baseball this year. He and his older brother just set ap a really nice lemonade stand, yesterday, and spent three hours running it (he’s the one sitting on the right with the red cap). They had a ball. (made almost $10 in profit). We have some of those 2-way radios you can get at Wal-Mart, so he’s in constant touch with me at home in case of any problems. Compared to his two brothers, his life is as ordinary as their, with the exception that he had to take medicine, and be cautious if he feels sick. He also deals with bouts of emotions, but by reminding him that unless he has a real reason for feeling mad or sad, it’s just the CAH making him feel that way, and he doesn’t have to let it control him, he controls them, and they grow fewer as time goes by. He’s now in charge of his and his little sister’s (who also has CAH) medicine. There’s an alarm watch strapped to the medicine bag that goes off when they need their meds, and sometimes he remembers and sometimes I have to remind him, but he knows the doses, and takes his and gives his little sister, hers. So I guess the biggest difference between him and his brothers is that he’s learning more self-control and more responsibility. Those aren’t really bad things.