Hi A,

I don’t think you have to really hope that his life or problems with CAH will be bearable. I think his life will be great and hopefully what he goes through will make him stronger for it. If you think about it, most of his childhood years, you will be the one to worry about his doses, height, illnesses....he doesn’t need to be worried with this. Once he is grown he will be on his own and since CAH is highly manageable, chances are he will be just as happy as any one else. Show me one adult who doesn’t take some kind of pill for something...high blood pressure, diabetes, thyroid, asthma, other medical conditions and that is one super human. I think that whoever posted that your attitude about the whole thing will rub off on him is very accurate. I, for one, will tell you that I was very, very, very upset when I found out about Jackson’s CAH. I was very sad when I found out that this baby I’m carrying will have CAH also but it’s my job as a mom to worry about it and everything that comes along with it. I don’t want them to think that because of their CAH they have to limit their lives to only "safe" activities. I don’t plan on limiting anything they want to do. I will be worrying of course but always with a smile on my face because when the day comes that they are having a bad day and blame it on their CAH, hopefully they won’t dwell on it too long.

I try to save the good positive stories that some have posted about their lives with CAH so I can someday have my boys read them. I am hoping that when they feel sad or upset about what they have they will feel more empowered by reading the inspirational stories of others with CAH that have lived a happy, productive, normal life! As for me, I get inspiration and courage from other parents who have been there and done that. 

Sandra