I also dose without a set schedule, but I give medication only twice a day.  If it works?  I don’t know.  My baby is very blown, but he still looks much better than the time when he was dosed three times a day and got five times the amount of medication that he is getting now.  It’s possible that the cushingoid symptoms he is experiencing now are still leftovers from then.

I give my baby’s cortef and florinoff in his bottle together with formula.  He holds it by himself and I don’t watch how he drinks it.  Often when I come to check on him much later I can find his bottle still half full somewhere in his crib.  I put it back in his hands and he drinks a little more, drops it again and drinks the rest when I give it back to him.  Sometimes it takes up to a few hours until he drinks up the whole thing.  Lately I’ve started wondering if there could be a problem with it.  Does anybody know if it’s a problem?

Risty