The real Toni!OK Mary, I forgive you! I have to admit, I was confused to see another Toni posting!
Thanks for the growth charts Anne-Marie - I agree it does look as if your son was overdosed for a while in infancy but as you know this is not uncommon in CAH. My son’s growth was poor during the first couple of years of life too and he also had a delayed bone-age. I am surprised you were given suspension in the UK as my son has been on tablets since birth (now 15). He was under the care of Great Ormond Street Children’s Hospital where the endocrinologists do not consider any form of hydrocortisone suspension as reliable and as far as I am aware, the other big teaching hospitals go along with this view too, so it is never prescribed. Initially my son was on a 6mg daily dose (2mg x 3), this was made up by the hospital pharmacy and I was given powders wrapped up in greaseproof paper sachets (presumably crushed tablets).
I guess every parent finds a way that suits them and as long as the child is getting the medication, then that is all that matters. I believe better monitoring in ensuring children are on the correct dosages and growing normally is more important than how we administer it. Interesting debate though!