Susan,

I completely agree with you, but the endo insists that the manufacturer is giving them trouble. He also insists a medicalert bracelet isn’t necessary right now. I keep telling people, including my husband and his mother that what if story. What if we are in an accident...etc etc...who will speak for her if we aren’t able to?! Her endo is a good dr but I just think saying the manufacturer bit is pretty lame. He never even talked to us about the solucortef either. The only reason I knew about it was because I’ve done quite a bit of research on CAH and from this board. This is supposed to be a life saving thing and he mentions nothing about it to us. He always asks us if we have any questions, but never offers anything much unless we ask. How can we ask if we don’t know much about it?! We are so new to this.

Sherry