Vickie, I hesitated about replying to you, because I know that many think it is a given.  Aimee also made such great points that I had even more hesitation but after reading your post again, I wanted to add one thing.

Aimee pointed out the importance of making sure that this was something your daughter wants without being influenced by what you want or what the doctor wants to do.

There’s two things that really bother me from your post.  The most obvious one is:

I would like to find all information I can in order to make my decision.

This shouldn’t be your decision.  To be blunt, you don’t have a decision to make at all.  This should be your daughter’s decision.

To help her make her decision, I would highly recommend that you give her some say in this without parental influence.  A counselor not connected to the hospital may be able to her help her without as long as she knows the discussion and decisions are without parental influence.  You don’t say where you live, but I am sure that either CARES Foundation or my organization, Bodies Like Ours, can help find a counselor that is knowledgeable about this that she could see and talk confidentially with.

Vickie, this is a big decision for her, and you really need to make sure her honest voice is heard before it is made.

Betsy