AprilHi,
I am a young mom with a 13 month old son with swcah. Although my son is doing very well I constantly stay worried about the future for him. I read about people being depressed and overweight and some that have died by just throwing up once or twice. He has thrown up once or twice before but just because food did not agree not a virus is that kind of situation what they were talking about ? I’m almost in a state of panic when he is sick. I’ve heard of people who have had a lot of problems with this disorder. Im always nervous that he may not be getting enought salt or that I may give him to much. I am scared that I won’t know what to do if he gets sick. How long does the shot last before he needs more meds when in stress? I just have so many questions even thought I have read up a lot about CAH. I know this may sound like a stupid question but could everyone please give me as much info. as possible about this disorder and help me feel a little better and not so worried all the time about what may happen. I try and treat him and let him do the things thst any baby would do and I don’t want to make him feel like he is not normal when he gets older. I’ve actually gotten more relaxed with the whole things but could use some help still. I’d appreciate any comments, info. or advise. Thanks for your time!