CAH Newborn Screening news (July 2003)

The March of Dimes got some terrific press for expanded Newborn Screening today. A story on their mission to see universal expansion of newborn screening was published on several internet wire services, highlighting CAH newborn screening. The story can be seen at

By the way, they have several errors in my interview, but the one involving Nevada NBS deserves correction. A group of energetic, smart, wonderful NV parents began advocating to have CAH be included in the RFP sent out by the State of NV for its laboratory contract renewal. The proposal that was circulated did not include CAH. The state was so swayed by these parents that it recalled the RFP and sent out an amended RFP that included CAH. This was in February. Nevada approved expanded NBS including CAH and MS/MS and began the expanded screening July 1. Way to go Nevada!

Kelly R. Leight, Executive Director
CARES Foundation, Inc.
(Congenital Adrenal hyperplasia Research, Education and Support)
973-912-3895
866-227-3737 (toll free)
email: kelly@caresfoundation.org
URL: www.caresfoundation.org
Disclaimer:
Any communication from CARES Foundation, Inc. is intended for informational and educational purposes only and in no way should be taken to be the provision or practice of medical, nursing or professional health-care advice or services. The information should not be considered complete or exhaustive and should not be used in place of the visit, call, consultation or advice of your physician or other health-care provider. You should not use the information in this or any CARES Foundation, Inc. communication to diagnose or treat CAH or any other disorder without first consulting with your physician or healthcare provider. Any referral to physicians is provided as a courtesy only. CARES Foundation, Inc. does not specifically endorse or recommend these physicians.