robertaCARES has networking and is a great support giving organization. http://www.caresfoundation.org/contact.html
CARES Foundation, Inc.
P.O. Box 264
Short Hills, NJ 07078
Kelly R. Leight, Executive Director
1-973-912-3895 (in New Jersey)
1-866-227-3737 (toll free out-of-state)
or email: CARES Foundation, Inc.Email me - robertapreston@t-online.de - I have two children (boys) with salt wasting form of CAH