WolverineNancy:
Have you had blood work done to check for anemia which can be serious enough to put you in the hospital or other things like the thyroid gland? I have Simple Virlizing CAH diagnosed at birth and my loss of hair was due to anemia and not CAH. Then again your hair loss could be from the CAH too! It sounds like a trip to the Endo for some blood work would help pinpoint the answer.
GOOD LUCK !!
Aimee