Dear Jill:

When I post it’s just from my own personal experience with the hope that it can make it better for some kid down the line. Everyone with the condition of CAH is so different and all of my posts are only a "heads-up" to be aware of something that may happen. I would not do anything without the monitoring of an Endo.

There is a lady on this this message board that had in the past posted about her husband’s (that has CAH) need for calcium med/supplement due to bone loss. I also know of three other women with CAH that have bone loss and take med for it. One lady only found out about her bone loss after a car accident.   

I’m not much on the studies and I have to admit that is one of the reasons why I come here also ! Many, many people on this board have great search skills!  but I did find one piece that might be of interest.

Effect of Glucocorticoid Replacement..., Annals 1 Feb 94

http://www.acponline.org/journals/annals/01feb94/bone.htm.

 

Take Care,

Aimee