re: re: re: re: Can a person turn out extremely tall because of CAH and the treatment?
Aug. 12th, 2003   5:46pm

Well when replacement cortisol comes into play and other hormones, for what it’s worth I think the height prediction stuff may as well be thrown out of the window.  For one you would have to have a child growing at the normal rate to take any noitce and two, these kids hormone levels are never "normal" anyway, so your easting your breath trying to predict and hope to get it anywhere near right.  I don’t think any kid could grow "taller" than their parents who has CAH.  I think the best you can hope for is 5 ft 3" and up really.  Anything on top of that has to be a bonus and completely depends on how the Doctors control the CAH.  You will get some Doctors that run them under tight control and monitor frequently and others that are not so careful.  I think the quality of height comes from the quality of control and treatment.  Neglect that and don’t pay attention to the hormone levels for any given period over and above three months when the childs growth has altered their dosage needs and it will definately have some deleterious effect on height potential without a doubt.  Simply put, there is no "valid" way of catching up loss of height and no way of reversing growth that has advanced.  There is certainly no way a child would grow "taller" having CAH.  Even growth hormone in theory sounds implausible as it is only the same stuff as HGH, which our kids are exposed to plenty of if not too much of at times, which actually eventually leads to "short stature" not tall stature.   I mean think logically about it.  What are the two factors that cause short stature.  TOO much HGH and not enough.  So injecting the stuff in the hopes you can boost it is just going to advance things to quickly anyway.   mean how does anyone control a drug like that in children whom are all growing at different rates anyway and whom nobody knows exactly how much HGH they would "normally" produce?  

People will not understand this angle on the whole issue and have their children have the treatment  believing that it will help when the only thing to suppress HGH in these kids is over treatment and to avoid this it means checking children frequently and not less than three monthly and making sure they are growing at a reasonable pace of dropping their doses to suit.  Or even dosing the kids cortisol as it is produced by the adrenals.

Anne-Marie
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