re: any information on congenital adrenal hyperplasia/adrenal genital syndrome
Aug. 17th, 2003   7:29pm

Dear Gail:

So glad that you found this site, there is a wealth of information here that will benefit you and your daughter!

Under the main page before you click on to any of the boards is a great definiton for CAH. Just remember that your daughter’s future is so bright that she’s got to wear shades!

I was born with Simple-virlizing CAH, 33 years ago and I don’t look a day over 26 ( lol).  So, I don’t have all the information for the school but a lady named Kelly Leight from the CARES FOUNDATION might have a formatted letter that you can pass on to your daughter’s school.

http://www.caresfoundation.org/

Email:  Kelly @caresfoundation.org

http://www.medicalert.org

Best Wishes,

Aimee 

 

 

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