I live in a small midwest town with my daughter.  Since she was born I always told everyone that she was a saltwaster so that she wouldn’t grow up with the stigma that is unfortunately attached to CAH.  While I was really excited about the article, the way that it was presented brings  a bad taste to my mouth.  Now my little girl is going to have face questions that we never dealt with before and frankly I don’t think are anyones business.  but I feel that if they are left unaddressed then it will become worse and the rumors will expand etc. . .

I am in tears.  I am glad that this family could share their story but I feel exploited.  I have already had one question asking if she is really a little boy based on that story.  I hate this.

I am angry and hurt but yet still open to suggestions as to how to handle this.