I think Kaye was a very brave mom for sharing her story, and her daughter’s story.    Like it or not, call it sensationalism or not, the sex identification and surgery issue discussed in this article is the biggest part of our lives.  Do I bang my drum loudly because I have to take meds every day?  Of course not...that is the easy part. 

What this article has done, and what Kaye has done is broken down yet another layer in the shame and secrecy that surrounds CAH.   Secrets of any type are bad in all families, and they only perpetuate further secrets and shame.  That is a basic fact of life, regardless of CAH.

Devestated, do you really think that some people you have told your daughter has CAH haven’t looked it up on the internet?  If so, then I think you are living in a dreamworld.  People are curious, and with the internet, can learn all sorts of things.  Do you think your daughter will never look up CAH and find out the truth?  Secrets don’t build self-esteem, but honesty from parents will. 

I don’t want or mean to sound harsh, but what this article discussed is a major issue in the lives of CAH girls and their parents---maybe the biggest issue.  You can call it sensationalism, but I see it as being truthful and good reporting.   To ignore this part of our lives would be dishonest. 

Betsy