DevastatedI am sorry that you are ashamed to be in the same category as me, I would never say that to you no matter who you are or what your feelings are because we are all in the same boat. THAT saddens me. You are of course entitled to your opinion and your way of thinking and feeling about others.
After your first paragraph you need said many of the same things that I said - would I have felt differently if it were handled in a different way? Of course I would have. If more attention were placed on the fact that they could have lost their daughter because of a doctor’s ignorance of CAH and the need for more attention to the education of it, I would have welcomed it with open arms. . . but once again, the most important thing to them was what it was going to take to sell the article. The surgery. Something that is already over and done with while her medicaiton and treatment will go on for the rest of her life. A small blurb about infant testing at the end of the article is not going to make up for the lack of depth of the rest of the article.
I also would have felt differently if the child written about had been older and knew what the possible effects of the disclosure of private issues would have. She had no choice in the matter and will now have to live with the consequences of a decision that she had no control over.
I would like to know how the family presented themselves as an idea for a story. Did they present themselves in this light, did they know that the front page of the magazine and internet blurb was going to say "I THOUGHT MY LITTLE GIRL WAS A BOY" ? Or did they want to bring more attention to CAH and it was just exploited for sensationalism.