I have mixed feelings about the Lifetime article.  At first, I thought it was neat to read someone else’s story that was so similar to our own.  Yet, I quickly noticed all the things that were left out--important stuff!! The medications were brushed over and nothing was said about the cautiousness that we as parents of kids with CAH must take.  I see my girls as "normal", but I also don’t tell people outside of close relatives and friends the details of CAH.  In fact, I don’t mention anything about the genitalia bc that really has nothing to do with the disease after it is diagnosed and treatment begins. 

As for some of the replies already generated about getting exposure--I agree with DAnny.  Scientists, educators, physicians--people who could help the cause-- will not read this magazine.  Had it been in TIME or NewsWeek, maybe.  Probably the only people who ran out and bought this edition were those of us who read about the article on here and wanted to see it. 

Kaye and her family were brave in telling their story, and for all we know, it could have been  the editors who "left out" all the other important stuff.  For one, they should have done some other research outside the family interview to gather scientific facts.