BethMy cousin who’s child has CAH is currently looking for a good endo in Montreal, Canada. I tried asking on this board if someone from that area can refer me to anyone but haven’t received any serious feedback so far. You mentioned that you have wonderful doctors over there. Maybe you can share with me information on whom to send her to.
I am a carrier of CAH and a mother to two little children. My second boy has CAH.
When I was pregnant with my first son (not a CAHer) I was terribly nauseous till the end. I didn’t eat for days because it was easier for me to vomit on a empty stomach rather than when I was full. I through up six times a day in the first five month and than three to four times a day until after I had the baby. It took me two full weeks after delivery until I was able to eat my first portion of chicken again.
I had another pregnancy a few years later which was every women’s dream. It was a real breath. Besides for the positive pregnancy test there was nothing else to make me feel I was expectant... but I started staining when I was five weeks pregnant and had a miscarriage two weeks later. I know of many people who claim that when they feel great during pregnancy they know that they won’t make it with healthy baby to the end. Being nauseas throughout is truelly a nightmare but it is also a strong indication that the pregnancy is good and a strong one. Usually those who are nauseous don’t stain at all.
When I became pregnant the next time I kept on reminding myself whenever I felt that I couldn’t take it anymore, of the results I saw in that previous "very comfortable" pregnancy. That knowledge helped alot to make it through.
First time pregnancies are in most cases the hardest for every mother. The second healthy pregnancy I had was also a hard one but much easier compared to the first one. When I was in my fifth month I was already able to eat almost anything. Also I learned to control it pretty well. I tried not to think of food (thinking of food is all that I need to make me through up really bad) at all (let alone cooking or smelling food) and whenever I felt I was going to through up, I ran to the air conditioner right away and sat there for until I came back to myself completely. During pregnancy other peoples food are to most people more appealing than their own. In those rare cases when I cooked or baked something I made a different recipe (not necessarily better) from what I usually make so it shouldn’t taste like it’s my own.
Anyway, I made it to the end with a second baby and would certainly do it again. I agree that it’s very much worth it... as long as the fruit of the pregnancy is ripe. Believe me, the anguish I had the first few month after learning that my baby has CAH was much worse than the hardships of his bumpy pregnancy. If anything would make me reconsider it would be the scare of having another child with the condition, although at this point I feel ready to face this risk as well.
Wishing you all the best in trying to conceived and a happy and healthy pregnancy and delivery.
Beth