Hi Linda,

I find your story interesting as well because during my second trimester i developed high blood pressure and even after my C-Section - it continued to this day (3 1/2 yrs) I have been taking high blood pressure meds since. (Atenolol) i was told that it would be safe in preganacy should I get lucky enough again...

i understand the courage issue as well as my husband has been ready to add to the family for a year now but until this summer I have been on the fence. Not becuase I do not want another child - but because of the fact that pregnancy hormones just don’t seem to agree with me at all! I always thought it was because of my CAH and that is why I was thrilled to find this site! Until now, the only person I knew that had my condition was my sister. And since i am the oldest and my sisiter has not experienced pregnancy yet (hopefully soon!) I had no one else’s experiences to draw upon.

i have always been told by doctors that my condition is very rare. (At least in canada) But both of my parents come from Europe and were carriers.I did do a fair amount of reasearch on that when my husband and I were going for the genetic testing. I was dumbfounded when the genetsist told us that the chances of my husband being a carrier were 1 in 60. It the chances that both are carriers that is more rare and since I have full blown CAH, it was a given to test.

In reading this site over the past few days I have been amazed (and lost some sleep thinking about all that I have read) I wish my Mom or my sister and I had the oportunity growing up to hear other peoples experiences with CAH. That is why I said that I am more that happy to answer anyone’s questions. Openly and honestly, because I am reading about so many of the concerns and fears that we had.I have lived to tell that so much of it was truly unnessary anieties (although completly understandable at the time!) So much so that when i was considering whether or not I wanted children and westling with the fact that they may have CAH (before we got the genetic results back from my husband) and have to experienced all that I have went through - my conclusion was that if I have been doing it for the past 34 years and i think i have not turned out so bad.... why should that stop me from having a little girl of my own - even if she would have CAH.

I pray every day for the courage to do it again because she is worth every second.

If you want one too, perhaps we could encourage each other....