Hi Mary - I am the mom  of an 11 yr old SW-CAH son! I didn’t realize that besides CarolM that there was another boy close to my sons age near by.  (We live in RI and have met CarolM and her children - FABULOUS family!!) If you get a chance and are willing, could I ask that you e/mail me as I would like some imput on your great doc! Carol and I have chatted many, many times in the past and I would love to talk to someone else that sees this particular endo and get some feedback. Thank you.