Carol,

Thank you SO much for your post... You are great just by spending the time.

I fully share your comments, perplexity and doubts. I have the feeling that the whole thing is managed very superficially, and I am astonished.  I don’t understand why they say that Chresten doesn’t have other forms of hyperplasia, I have asked the question a million times by phone and email; I never got the units of measure of the ACTH stim test, I never got ANY sort of conclusion together with those results, I had to send several emails to get them, I was informed to stop the medicines by phone by one of Dr. New’s fellows that I didn’t heard of before... Frankly, it was a big effort for us to go to Cornell (I have another two children so it was not easy) and it is being, so far, quite disappointing. I’m giving myself this week to let them come with proposed next steps, and then we’ll see. I take good note about Dr. Pang. Maybe I contact her this week and send her all the information. This is becoming a nightmare...

Thanks again.