Please answer some of the questions I have listed here to help me with my own personal experience with having a child with NCCAH. It will help me to see what others are doing to answer all those "why" questions I am getting so frequently. Please either email me or post your results. Thanks so much!

1. Have you told your child about their condition?

2. If so, how did you tell them?

3. Did you go into many details? If so, explain.

4. Are you an adult with CAH? How were you told of what you had? Was it positive? Negative? Please explain.

5. What advice can you give me as the best approach to address the many questions of: Why do I have hair(down there), why do I need to take meds, why do I need tests?

6. Do you think it is the best approach to tell your child in a formal way or an informal way? (i.e. just sort of mention it as they are playing, or sit them down and talk about it).

7. If you haven’t yet told your child, how do you plan to tell them?

8. For those of you who have told your child, what do you regret most about your approach and how would you change it or would you do it the same way?

 

Thanks everyone for your input!! I really appreciate it... it will be a God send!

God Bless,

Linda