Kate,

So good to hear your story. You sound like you’ve done a wonderful job with your kids, despite very little support.

I agree with you when you say that you feel angry, when you consider, that the hospital has never steered you towards any connection with others with CAH. Maybe they don’t think it is their role to support in this way, but I have to ask "where is their heart"? This problem of isolation, happens worldwide. Of course, there does exist the odd exceptional doctor/endo, who has thought more broadly than the presenting clinical implications of CAH, and helped the emotional aspects by putting people in touch with each other. Fortunately, the internet now is aiding these connections....and by the use of this site and others, the importance of this aspect has become very evident.

Hope you get good news regarding the genetic testing!!!! 

Megan