re: Attn: Eric B
Oct. 7th, 2003   4:51pm

Hi, Valerie.  Regarding my extra solu-cortef, I simply have "stashes" all over the place.  Namely, in my bathroom, my briefcase, both of our cars, my toiletry kit for travelling, and even my golf bag.  I also keep extra oral hydrochortisone (I take 60mg daily) in each of these locations.  I realized long ago that it’s better to be over-prepared than not.  Being an hour away from home, and realizing I have no medicine, is something I never care to experience again.    Which leads me to answering how an adrenal crisis feels, and how they have manifested.  For me, each crisis I have experienced was triggered by something -- typically illness, dehydration, or extreme stress.  My joints start to ache -- I suddenly feel 90 years old.  And I simply start feeling awful -- like, I want to crawl in a hole and die.  It’s like a sudden, wicked depression.  I’m normally a cheerfull person, but when I start "running low", I hate everything and everyone.  And it comes on within hours.  I took me a long while to realize this adrenal-related.  I am now religious about taking my medicine EXACTLY at the same time, every day, and I never hesitate about doubling or tripling my dose when I’m starting to feel sick.  I believe the key to a healthy, happy life for me is to be proactive, not reactive.  And for the last 10 years, or so, it has been working like a charm.  As far as my height -- I’m estimated to be 2-4 inches shorter than I would have been without CAH.  When I was diagnosed at 4, my bone age was 7.  By the age of 12, my bone age matched my age.  I stopped growing by 18 or 19.  I come from a very tall family.  My father is 6’2", a non-CAH brother who is 6’3", and non-CAH cousins who are 6’6".  I’m the shortest male in my family at 5’11".  I am also the ONLY known case of CAH in my family.  Lucky me.  :-)   I hope this answers your questions.  If you have any more, I’ll be happy to answer.  Take care, Eric

Eric B.
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