Our 7 year old SSW CAH daughter had her endoscopy today.  We were at the hospital for 8 hours for a procedure that lasted 20 minutes.  There was a lot of waiting, many blood tests, IVs started early, solu-cortef, lots of monitoring, etc...!  She came through it like a pro!  I was worried something would go wrong but I was vigilant with the nurses about the endocrine protocal from her ped endo.  They were so good about everything.  We will not know until Friday what the problem is with her severe acid reflux, stomach pain and spitting up is.  I’m just very glad things went so well.  It was sort of funny to see her though on those sedation meds.  She was like a drunken sailor with the munchies.  The procedure was not until 2 pm and she hadn’t eaten since 6 pm last night- she was HUNGRY!  But she was soooo loopy!  She kept saying "Hi- two moms [she kept seeing two of me] I’m very hungry and my nose itches."  "My eyes don’t work right now- how many of you are here?"  It was good to be able to laugh and not feel the stress that so many parents at Children’s were feeling.  I went to the cafeteria to get a coffee and as I sat down, the family at the table next to me were crying and hugging as they had just heard from the doctors that their 3 year old son was dying from meningitis.  When I start to feel down about CAH, I remember all of these families who are actively loosing their babies.  My husbands co-worker just lost their 4 year old son from lukemia.  I hate to say it, but their are some days I feel lucky that all I have to deal with are 2 kids with CAH.  God bless those families who are loosing their babies right now.

Josie