To Risty
Oct. 10th, 2003   1:14pm
By stating that I stash away supplies of solu-cortef in a variety of places, I did not mean to imply that I’m having crises more frequently now.  On the contrary, I have not had an episode in over a year.  My point was that after living 30+ years w/ CAH, I fully believe one of the keys to leading a happy life is to always be prepared.  The worst situation for me is to be stuck without it.  The only way to achieve this is to be squirrel-like and stash stockpiles all over the place.  As I’ve grown older, I’ve become more time-sensitive to taking my meds.  I don’t know why, and my doctor doesn’t have a good answer.  But my wife can usually tell just by looking at me if I’m over an hour late.  And regarding stress-dosing, I used to be very resistent to it.  All I’d heard all my life was of the incredible dangers of taking cortisone.  But as my endo. pointed out, the dangers lie mostly with those who have normal adrenals taking it, NOT those of us with CAH.  Even with taking 60 mg. hydrocortisone daily, I still have LESS cortisone-related steroids running through my body than the "average" person.  So, by getting over the fear of the occasional, short-term increase of steroids, my illnesses have been shorter,  and less severe, without any known consequences to date.  I honestly have no idea what is right for anyone else.  All I can tell you is what has worked for me.  Lastly, I must plead ignorance about your question of NC or SV.  What’s the difference?
Eric B.
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