KarenOur 3 month old son has SWCAH. We go from feeling like he is just a normal happy active baby who happens to take a little medication 3 times a day to feeling worried and watchful for the possible first adrenal crisis. We don’t want to be too casual about his condition, but we also want to fully enjoy all the joys of his childhood. Do any of you feel like you have reached a happy medium, or have any reassurance/advice to offer us as we begin this journey? Thanks.
Karen