Hi Karen and Hope - I am the mom of a SW-CAH 11 YEAR old son and, I can speak only for myself by telling you that, I still feel this way after all these years!!! I think because, in some respects, we all live in fear of the unknown. The main thing is to not let the concerns carry over to every single moment in your lives. Live your lifes responsibly and have fun. Take each day as it comes. Enjoy today, think about tomorrow - just don’t dwell on it. I agree Hope - I have also found Eric’s post invaluable. Actually, everyone who posts at this MB is invaluable. Knowledge is power!!!

ValerieD