I also attended the conference in LA on Oct 18. With the help of Kelly I was able to go!!!!!!!! Yes it was very informative. Dr. New is so wonderful. She is a very caring person, down to earth and really really cares about our children. I learned a great deal! She is working on gene therapy to cure our children. Well actually make them a carrier which they would never have to take medicine. We all need to get together somehow to get to the NIH to force them to give Dr. New funds for this research so it can be done asap!!!!!!!!!!!! Thank you Dr. New and all the Dr.’s at the conf for there hard work.  Kelly Leight there are no words I can say good enough for all your time, effort and for especially starting this foundation that has been so helpful to all of us. You are an angel.