You sound like you run about on our shcedule. We have 1 year old twins, both with SWCAH. We give meds upon waking in the morning (6:30-8), mid afternoon (2-4) amd before bed (7-10). I have asked our endo if this is ok or if I need to cahnge things and he says that this is great. He says it doesn’t have to be precise. He feels that we should be in control of the disorder not it in control of us. In otherwords, if we sleep a little late one morning a week, thats fine--no reason to wake them up for meds. If we are out shopping at 2, we’ll give it when we get home.

I know a lot of people think this is wrong, but it works gret for us. They are both tracking their growth and doing wonderfully. He thinks that they are the most well controlled patients he has.

Cassy