I am so glad that you posted on this site Katrina. I, too, had a son with late onset CAH that we found out about at 1 and I was pregnant with a second child who did not turn out to have CAH. Anyway, I was so scared and this site helped me a lot. Trust me, it’s better that you found out now instead of later. I think that you will find that this genetic disorder is really not that hard to manage and soon as you get her under control, your daughter will be just fine. Just keep reading everything you can and make sure that when she goes to school, her nurse understands everything too. Good luck and God Bless.christine