Hello Mary:

Thanks for asking, we just heard back today that his 17OHP is going down it’s 9000 now so they feel like it’s on the way down...  They still have him on hydrocortisone 10mg Am and 3.2 Liquid Dex PM..  They told us that we will be looking at taking him off the hydro soon...  It is just till we get things going on the right track..  It is sort of like just there in CASE..

We returned the 17th and we were happy with this trip.  He gained some height and no weight..  So Dr. said that = weight loose.  We did extra blood tests, they gave him Dex every 6 hours and tested his blood in the morning..

He has some extra adrenal rest, but they were okay with that.  His bone age was 17 it was 16 1/2 last time so that good.  He is 15.. 

We will not hear about all the tests for a little while but we should hear more soon..

Please feel free to ask me any questions that I did not cover, or if it doesn’t make sense..

Thanks for caring

Brenda