Hi I went off my medication for a time about 10 years ago -just because I knew so little about CAH and was diagnosed as a teen. For me what happened was I started to gradually lose weight without trying (of course my appetite was not normal either) then I got headaches, my skin on my face looked grayish yellow, I was cold all the time(which happens to me now when my cortisol is low) I had troubles with concentration, spelling, being extremely tired and eventually I was hospitalized when I started throwing up and couldn’t get out of bed. I didnt know at the time that it was related to CAH - I just had a gut feeling that I was going to die if I didnt get help (and I probably would have). I also went through the same thing about three years after that - then I fugured it out on my own with the help of Cathy at Magic Foundation. I had never even heard of stress dosing - my education with CAH has been from this site..... and others Thank God!

Susan A.