Hello Susan,  Thanks for the helpful information, I wrote it down and will ask my doctor when I see him in May.  My history is a long and complicated one.  I was born at a time when little was known about this  disease and no medical treatment was available.  So I spent the better part of 12 years with no treatment.  My sister and I were sickly and quite thin from lack of an appetite.  Added to this is the fact that we grew up in a violent and abusive home  environment.  My mother never mentioned what was wrong with us and she acted as if our illness was something to be ashamed of, sad isn’t it.  The doctors also gave us little or no information to explain what was wrong with us.  All I know is that I was an ugly little kid who didn’t seem to quite fit in with the rest of the world.  So if anyone out there felt that way you are not alone.  Hopefully you had a better home life, which is so important for a child’s self esteem.  Unfortunately, my mother is still in denial and at 84 years of age she still doesn’t understand what it’s all about.  Both my parents were carriers of the defective gene, but of course, in those years who knew anything about genetic defects.  We certainly have come a long way in understanding complicated diseases and I am glad that today people born with CAH can get better treatment and help dealing with the problems this condition causes.  I still struggle with depression and other physical problems , so I have had to learn to accept my limitations.  What doesn’t kill us makes us stronger.  It’s nice to know that there are others out there who truly understand what we have to live with.  Well I hope I have been of some help to you and it was nice of you to respond.  Take care and be strong.  Your friend, Rose...