Susan A.Alicia - Aimee knows what she’s talking about - she’s been there. I have LOCAH and have dealt with some of it - but not the surgeries - which to me is the huge part! CAH does suck - no doubt about it - I have dealt with all the rest besides the surgeries - and you know some days are better than others. But still we are all here for a purpose. I did do drugs when I was younger - I medicated myself because I felt so lousy with undiagnosed CAH. I quit at around age 18 or 19. But I know it seems like it helps things at the time - but it really doesn’t. It just keeps you from moving forward with your life. You could be an amazing advocate for people who are just learning about CAH - but you have to help yourself first with the pain and bitterness. You sound like an intelligent woman - I’m betting you can do it. Best wishes girl!
Oh - and Aimee - you never fail to amaze me - what an eloquent letter - and from the heart - I really enjoyed reading it - even though it wasn’t for me.
Susan A.