Jill HWe live in Northwest ohio so it depends on how far East you live. We are just outside Toledo. It’s been a pretty rough past few months here but I will try to help now with anything I can do to start an Ohio group.
We have a 7 year old boy who has SWCAH. When he was first diagnosed we went to the Magic Foundations list of members and found a child who was close in age with him to be like a tracking buddy,I’d call to see how Andy was growing and what his labs and meds were. We were lucky and not only found a little guy who was exactly a month older then Caleb but we also were able to meet the woman who is now one of my very best friends.
We are going to take a trip to Cleveland Zoo in the spring if you live close it would be nice to get together.