Hi,

Cody has SWCAH 7 yrs. old. He has had headaches for along time now. Last year we went to the ER because they were so bad! We had to do the injection and triple his doses for about 7 days. They thought he had menengitis (probably spelled wrong) so they did a spinal. That caused a spinal headache and amphlified everything. He seen a neurogolist also. He was in the hospital for 1 wk. Needless to say they thought maybe it was sinsus problems. Took him to an allergy Dr. Been to peditrician the whole nine yrs.  Last night we went to ER again and they said triple doses and see pediatrician. I know from my list from my endo that headaches is one thing to be concerned about with CAH. Then they tell me its not CAH related because the triple of doses doesn’t cure the headache. I’m really lost about all this. His headaches are getting worse. Has anyone’s child had problems with headaches??????????? I have even taken him to have his eyes checked. I’m really worried. Is this just a part of the CAH affecting him? When he gets the headaches he’s like don’t anyone talk, don’t touch me - he is really hurting!!!!!!!!!!!!!