I’ve been wondering about Sandra’s posts about SVCAH because that is what I was born with but also for an added bonus I had external ambiguous genitals that didn’t know what they wanted to be thanks to those wacky androgens.

Reading Sandra’s posts over the last couple of months reflects the notes in my medical records (circa 1970-75). First they didn’t think I had CAH at all and then it was thought that I had SWCAH and then again it was thought that I didn’t have CAH at all. A "doubtful diagnosis of CAH" was written in the notes. Then you read about more blood tests with indeed a diagnosis of CAH more conclusive of SVCAH.

For years they thought I had 21-hydroxylase but then it was found I had 11-Hydroxylase and I thought the high blood pressure a the time was from dealing with my Dad’s girlfriend :)  The only time that High blood pressure ever came about was when I decided that I wasn’t going to take the cortisol but I realized that it isn’t beneficial to my survivial not to take the cortisol :) 

Michelle, I know that LOCAH effects one in 100 people and seems to be on a spectrum of side effects. There is stuff that people with LOCAH that talk about that I think is terrible to have to tolerate and I’m going nope, I never had to deal with that. The thing about LOCAH that sucks is that you do start manafesting symtoms a little later but for some people it takes so long for a diagnosis anyway. Mean while your body is going like helppppp meeeee!   

Sandra, I think SVCAH is pretty cool and with CAH your sons can do anything they want in life well except the military but they could be cops, right?. 

Best Wishes,

Aimee