re: VERY WELL SAID
Dec. 29th, 2003   8:30pm

Everyone,

You all have given me so many answers to all my questions. This one in particular about excitement, being over excited etc. All of the responses are very well said! It does really depend on your child. No one knows best but the one that is dealing with the CAH and the child day after day. It’s not fair that on a special occasion like Christmas we are all wondering how to dose our children instead of just enjoying. Or for just day to day for that matter. I just hope someday that Dr. Maria New comes up with the cure she talked about at the CAH Conference in LA last August. The gene therapy where they will all just be a carrier and will  never have to take the meds again. Wouldn’t that be a wonderful thing and it’s all about getting the money for the research. I believe she already knows that it will work!!!!!!!!!!!!!!!!(Don’t quote me on that) the conference was overwhelming at times with so much technical terms instead of down to earth terms that most of us could understand!

God Bless!

Jenny
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