Go to the CARES web page and read about Adrenal Crisis.  It is best to have a doctor that specializes in CAH and CAH surgeries.  Get the best doctors - especially for the surgery.  I have two boys with CAH (my daughter died at age 2 from an adrenal crisis). Get the solu-cortef.  Download the emergency letter.  email me - robertapreston@t-online.de and call/email CARES.

http://www.caresfoundation.org/