Kelly Leight runs CARES and she has a child with CAH, so that site/organization is by a real person who is affected by CAH. But I understand the personal touch a message board can provide. It makes the answers seem less formal and impersonal.

You want to make sure that the surgery they’re recommending is actually necessary and not cosmetic. Some doctors don’t explain that too well, and some parents oppose cosmetic surgery on infants for various reasons. Get all the info, and don’t let the doctor push you into something that’s not medically necessary, unless it’s really what you think is best for your daughter.

You might want to read Questions about controversial issues from our FAQ section which has info from both perspectives about the choice of surgery.