Dear worried mom,

We’ve all been there.  My daughter Loghyn is now 9 months old.  She has SWCAH.  I know that it was horribly scary at first.  They were watching her for it from birth because of virilization.  She showed her salt-wasting at 4 days old.  Have hope that things DO get better though.  It’s amazing how these little ones adapt to taking meds . . . and how we big ones adapt to giving them!!  ahha!!  I thought, at first, how much extra work it was going to be . . . but now it’s just as much a part of the routine as feeding her, changing her diaper, playing with her, and loving her!  She is a beautiful, smiley little thing!!  The happiest baby I’ve ever met.

My husband and I have decided to have Loghyn’s surgery done early this year . . . probably before she’s a year old.  But as in anything, that’s a decision only you can make.  Just gather as much info as you possibly can and talk to the best doctors available.

As far as meds go, we ALWAYS keep extra of her prednisolone on hand and with us . . . as well as the Solu-Cortef injectible in case of emergency or severe trauma.  I would recommend the same to any parent who asked about it . . . and I think most (if not all) parents of CAH children would agree . . . it’s just not worth taking the risk.

Good luck!  and you & your daughter are in our prayers.  Please feel free to email me if you have any questions or just need to talk.

God Bless,

Jessica