after a very scary 3 day stint in the icu, my 12 day old son has been diagnosed with salt-wasting cah. his potassium was 11.8 and sodium was 114 upon arrival into the icu. was having major ekg changes. we are home now for 2 days and the doc. prescribed hydrocortisone 3x/day and florinef .1mg once a day initially. his florinef dose has now increased to .2mg/day b/c his potassium was 7 and sodium was 133, significantly worse than when he was discharged 2 days ago. is this common and is that florinef dose ok??? we are overwhelmed right now and appreciate any reassurances out there! this seems like an awesome resource.  thank you!!!

louise f.