Confused, need advice!
Jan. 10th, 2004   10:10pm
I posted months ago, but new concern now! My 4.5 year old daughter was diagnosed with LOCAH in Feb (03) due to traces of early pubic hair and a bone age of 6-8 years. Tests showed 17-OH be 900 (extremely high according to endo) She started taking Cortef to bring 17-OH to normal and to slow bone maturation.At the last exam, 17-OH was down to 110. However, the second bone age series (performed this month) showed that of a 10 yr old. I am very concerned and disappointed. Was I wrong to have assumed bone growth would be less than that since 17-OH was normal? Endo wants to do further tests, but not until March. He is at Scottish Rite/Atlanta and is very hard to see without appt. weeks in advance. What is the chance of getting her growth under control? Are there any specific questions I should ask at the next appt? I feel like an idiot for being so upset, but it seems her bones are growing rapidly in spite of the medication. Help!
rachel
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks