Our family is new to this CAH thing and I have been scanning the internet and this site for answers and advice. Your message reminded me that no matter how much I worry, everything is in His hands. My 4.5 year old daughter was recently diagnosed with LOCAH. I can only imagine how devastating it can be to receive such news about your newborn. I received the news about a year ago and kept asking God "why now? she’s always been perfect, so why now?" We just received disappointing test results after almost a year of Cortef. I have been struggling to understand all these test results, med dosages, expected outcomes, etc. when everything about her has always been so normal. Thanks for reminding me that He is in charge.
Rachel