re: To Sandra
Jan. 12th, 2004   10:34pm
Hi Sandra!  Please don’t think I’m ignorant, but I sort of was about all of this.  When the endo was explaining all of this to us I was so overwhelmed hearing about this disease.  I know it’s not the salt wasting.  I’m assuming it’s the late onset because we did not see any signs until  my son was probably 5 years.  The next time we go I’m going to ask.  When we first learned he had CAH I didn’t even have a computer.  I’ve learned and understood more from this message board than I ever did listening to what the endo told me.  Anyway -- since we stopped taking meds  a couple of years ago it’s hard to remember the exact doses.   At first I believe he took 10 mg in a.m. and 7.5 mg at night.  I know I had to break one in half for one dose.  My son was gaining so much weight after a couple of years I asked if we might try a lower dose and we did, but it didn’t change things much in that department.   The reason we were allowed to discontinue the cortef, as I understand it, is because once the body goes into puberty if his age was a certain closeness to the bone age the medicine has done it’s job and it is OK to let him grow naturally.  We were taking it to allow his age to catch up with his bone age.  To stop his bones from coming together so fast.  When we first went in and he was diagnosed his predicted heighth was 5’2" because of the damage already done.  Now, at almost 15, he is 5’7" and according to his new endo should be probably 5’9", possibly more.  Here I am sounding stupid again, but what is 17 ohp?? 
Jayne
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