With my thirteen month old son we went through an extensive horrible period of severe over suppression, no treatment at all, under suppression, over suppression again and finally (what I feel, not yet from a professional point of view) good balance. 

I have plenty of experience in how a child should look and behave in any of the above given circumstances.  

When levels are too high it is usual that a child will become bloated especially on the cheeks (and from my experience also the stomach and thighs) and will become very hyperactive and jumpy.  On the other hand, typical symptoms of under suppression is losing weight and continuing to become lethargic. 

The extra weight your baby put on, is defiantly from the steroids but it is likely that it is healthy weight that she was lacking because she wasn’t on treatment until now.  On the other hand, it could also be a sign of over-suppression.  When levels are in control your daughter should be at her regular weight. 

The dose your daughter is on currently does seem high, but since your daughter hasn’t been treated until now, it is not unusual for her doctor to start her on a higher dose than what she really needs, and than drop it as the levels get stabilized. 

May I ask what lead to your little girls current diagnosis and how they missed it until now?  There was a stage where my son was misdiagnosed with the non classical form of the disease, but with boys there are no visible symptoms and it is easier to make this sort of mistakes.  Also, how was your daughters activity level before treatment?  Was she healthy and alert?  Are you now seeing major behavioral changes in addition to the weight gain?

Good luck

Risty