I read the old post that Rebecca added from the archives and it brought up a question:

The previous 170hp level my son had was 89 after meds.  His endo considered it to be suppressed, claiming that normally children with CAH should have a 170hp somewhere between 500 and 1000.  At the time they didn’t decrease his dose (in fact it was even increased it and than decreased it again when I complained of over suppression symptoms) because his sodium and potassium where abnormal.  But now, since we started salt supplements and he is doing much better I am afraid his endo will want to lower it at our next appointment.  I like him the way he is now, he is not really cushingoid and he his alive and bouncy.  I am afraid of another change (besides, maybe if it may help to increase his height).  Does a 170hp of around 89 after meds really seem so suppressed?

Risty