I stated in the post to Michele "you can be a part of their studies" which is different to me then you will be a part of their studies which to me would be rude like both of you ladies felt.

I was born with simple-virilizing CAH, 33 years ago and I’ve been studied my whole life. It wasn’t until I saw all these cute kids and babies with CAH that it became worthwhile to me.

Kelly Light and the CARES FOUNDATION is just amazing. I like that people are being educated about CAH. I was no different than Michele at age 20 other than I’ve had a few surgeries under my belt (understatement there) but still I had no idea of what my condition was.

I was able to be in studies so that the medical students could learn but telling me about it? I would walk away bewildered, confused, and angry because the doctors would deflect questions that I had about my own birth defect. They would just spout positive things that weren’t based in truth and it felt like they were doing me a disfavor. I want positive and realistic answers which some people might not want.

Michele, I hope you post and tell of good accounts because it would help so many. We are all on this raft together, even though some of you want to kick me off : ) It’s OK , I’m a surviver as any one with CAH is : )

Cornell is the center or one of the centers where the Doctors main focus is CAH and it is cool that I’ve been able to read about something like that in my life time. There are surgeons there who have a main focus of helping someone get reconstructive surgery for genitals that the person doesn’t like. She is 20 years old and she has the posibilty of going to surgeons that are experienced in this. I’m so excited and I don’t even know her. She can help herself and pass that info on to help others if she wants to    

Again, sorry if you ladies thought my first post was rude. I can be straight and to the point which might be a bit much for some. I’ve dealt with CAH my whole life and I deal with it in a very matter of fact manner which might come off as rude and cold to some.

Aimee (Wolverine or Scout ?)   I like Scout because I sometimes feel like I’m an Indian that is exploring a brave new world full of challenges that I can now deal with due to my understanding of growing up with CAH.