My son was so excited when I told him that we were going to try to schedule a get together with other people/children with CAH.  He is 8 years old (soon to be 9) and is almost as excited as he was when we attended the Magic Convention!!!

My daughter (carrier) reminded me of how much fun everyone had when we had about 40 - 50 people over our house for a pool party.  I was on the Board of Directors of a group called Parents Available To Help (PATH - based at Yale) and there were children with all sorts of diseases and disorders.  It became an annual outing with each person taking a turn hosting the event.

There are several people from New York and New Jersey who may be interested in attending as well.

There is something kind of magical that happens when kids get together and everyone already understands the trials and tribulations of their disorder.  There is usually an instant bonding that occurs.  No one seems to feel like an outsider or has to watch what they say for fear that people may not understand what CAH is all about.  Even the siblings seem to be more at ease because they know that other kids have probably experienced the fear and frustrations of having a loved one (or two or three) who has a potentially dangerous disorder.

How about shooting for some time in the summer when everyone is out of school?

Thoughts or suggestions?